Monday, January 5, 2015

After yesterday, I was thinking I wanted to write about lies, (The kind you tell and that George Washington did not).  But I have been sleeping a lot lately and my leakage issue (figure it out.  I am not expounding) has been out of control.

You may think that extra sleep is a good thing, and normally I think sleeping well is highly underrated.  However, I have been close to narcoleptic in the evening, and after nearly  pulling an old lady all-nighter ( only having to get up once to pee), I am sleeping till 6:30!  If I was going to bed super late, that may be acceptable.  But I am basically falling asleep on the couch watch TV at 7:30 or 8.  I 'm not talking about a light snooze, either.  I'm talking full-blown REM-wake-up-up-knowing-where-you-are type sleep.  Sometimes I feel too tired to go to bed!

My worry, as always, is that the insidious worsening of scar tissue in my brain is again making a ploy to make living life even harder.  I have already graduated from a cane to a walker.  No one ever questions my need for handicapped parking, and I have become a connoisseur of incontinence products.  I'm 52, and I see ads for AARP with women in high heels and mini skirts, or men climbing around on rocks, or couples dancing  the night away and I get pissed.  Even if I could do any one of those things, I couldn't stay awake long enough to enjoy them.

I am aware that, in the grand scheme of things, I am pretty lucky.  I have truly amazing, caring doctors.  I have a supportive family, and I am able to drive and maintain a semblance of independence.  I am aware of other people with MS who struggle through sub-par healthcare and unrestrained symptoms.  But sometime, I just want to whine.

I'll got off the pity pot tomorrow and tryto be interesting.

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